F.A.Q.

What is Joseph’s Journey
Who is Joseph?
What type of CHD was Joseph born with?
Why do you share this information online?
Why should we join?
How do I join?
Is there a cost to join?

What is Joseph’s Journey

Joseph's Journey is a Family Center for CHD site that not only strives to explain and educate families of CHD but was also created to be here for other families with children born with CHD.  To share with them our Son's Journey as well as up to date information that could be helpful in helping their child.  We strive to be a family oriented site that is here for the entire family and child/adult having a CHD.  
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Who is Joseph?

Joseph is our beloved son born with CHD on December 12th 2011.  We share his story to not only educate people about CHD but to also share the experiences of a child born with chd and the emotional impact it has on the entire family.  
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What type of CHD was Joseph born with?

Joseph was born with Truncus Arteriosus Type 2.  You can read about it more by reading here.  
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Why do you share this information online?

When Joseph was diagnosed with CHD, I had no idea what CHD was let alone know how what to do.  Questions and emotions flooded us-especially denial, "What! My son has What - Couldn't be - your diagnosis must be wrong, not my son...".  Little was known about this and when you search online either you hear all about the grime reaper or information you could not easily comprehend.  So, we decided to not have this journey be in vane but to share real emotions and any set backs and even the good times and the family life and how things have changed and how things are even still normal.  That and current information and even a support community as well is here for anyone to read or join and to learn about CHD.  We hope one day CHD will be a recognized phrase and people will be better educated with this disease.  1 out of 100 children worldwide are born with it everyday, the numbers are staggering.  It happens to be an unbiased disease as well, striking both rich and poor, any race, any religion any family in the world.  Please share our site to educate others.
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Why should we join?

Though our information and Joseph's Journey will always be made available to the public, we offer a lot more when you join our community.  We have groups and forums and places to share pictures and documents and even allow you to help participate in our Post writing.  There is a place you can share your awesome heart friendly recipes and create a shopping list when you find some recipes you like as well.  Chat with one another in our group chat and message each other as well as make friends and follow each others journeys.  Share information with one another on the progress or concerns that you may have.  Leave comments on posts and even vote on which ones you like.  So joining has it's advantages and we hope you will become part of our community.  
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How do I join?

Joining is easy, there are a few requirements though.  In order to join you should either have been born with CHD or have a child with CHD or be a concerned family member with someone with CHD.  If you fall in these parameters then you can easily contact the Parents of Joseph and tell us a bit about yourself.  To register, you can either click on the create a new account or in the lower right hand corner of the page you will find a register link, click on either and fill the necessary information out.  Contact us again introducing yourself with the username you selected and we will in most normal circumstances approve you within 24 hours or less.  If you choose not to join, just remember, anyone can view the information we provide in our open Blog.  
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Is there a cost to join?

The simple answer to this is NO!  There is no cost to join or to take part in the support group.  Now, remembering there is a cost factor in running, maintaining the website, its name and other costs--If you like the website it is asked, only if you can - to donate what you can to help. But the site itself, for as long as we can maintain it will always be free to join and always free to read our blog.  
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