As we walked into the room, we have seen all the machines, breathing,
medicine and heart machines as well as all the monitors‐‐Frightening! All the
flashing lights along with the constant beeping and alarms going off. The vast
number of wires connected to him leading to the machines along with all
the tubes coming from his stationary body was utterly heartbreaking. Just to
see our precious child lay motionless, not a movement but from his chest from
the breathing machine and his heart beating, controlled by all the medicines
to make it pump. The chest is needed to be left open from not only removing
the heart from the chest cavity but from the bruising of the other internal
organs that had to make way for the heart to come out. Swelling should
subside after a few days and the chest then can be closed. For those that are
preparing for such ‐‐ we hope this video and the pictures will help you
embrace the unknown and your child too ‐ will sustain the breath of heaven.
* We wish to thank Amy Grant and her Management team for giving us
permission to play her song Breath of Heaven for the background music.
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